How do you help a person with an intellectual disability achieve a higher quality of life?
Providing support, companionship, and dedicated, compassionate care can go a long way, but the Fatal Four can destroy any foundation you work to build. Dehydration, constipation, aspiration and seizures make up the Fatal Four. These conditions have the potential to severely impact a person’s quality of life and, in some cases, can be deadly.
Why is Dehydration One of the IDD Fatal Four?
Dehydration is a minor problem, right?
No, it isn’t. Just ask Marc Carter, whose son Ben has autism. As reported by CNN, Ben refuses to drink from any container other than a specific blue cup. When he didn’t have access to the cup, he experienced dehydration so severe that he required emergency medical treatment. Unfortunately, the manufacturer stopped selling the cup years ago, and Ben’s father feared for his health when they were no longer able to find replacements.
This story has a happy ending: the cup’s manufacturer provided a lifetime supply of cups, so today Ben is happily hydrated. Though the solution to Ben’s problem was a unique one, dehydration is a common and dangerous problem for people with intellectual and developmental disabilities (IDD).
Dehydration simply means that someone doesn’t have enough fluids in their body. Water plays a key role in many bodily functions, and when those functions are disrupted, simple dehydration can spiral into serious problems.
Risk Factors for Dehydration
People naturally lose fluids all the time through sweat, urine, and other normal bodily functions. Replacing those fluids is what keeps our bodies hydrated. Anything that causes a person to lose extra fluids, or to take in less fluids, can result in dehydration. Common concerns include:
- Vomiting and diarrhea increase fluid loss.
- Illness, including fever, infections, or other common illnesses, can increase the body’s need for fluid while also decreasing the person’s motivation to drink.
- Diabetes can increase fluid output.
- Decreased fluid intake for any reason is a concern.
- Excessive exertion or perspiration can increase fluid loss.
- Extreme temperatures – both hot and cold – can cause fluid loss.
- Advanced age reduces a person’s ability to retain water.
- Certain medications increase fluid loss through urination.
- Infants and small children lose fluid more easily than adults do.
These risk factors can be further complicated by disability. For example, many people with IDD experience disruptions in their body’s senses and signals. These individuals might not know they are thirsty. Others may have difficulty communicating thirst or may be unable to get a drink on their own when they need one. Others may have unique behavioral needs, such as Ben’s need for a specific blue cup.
Individuals who can identify thirst and request a drink or get a drink independently may still have an elevated risk of dehydration. For example, some individuals who require substantial support to use the toilet may see skipping beverages as a solution to other problems. If they don’t have access to a mechanical lift away from home, they may prefer dehydration to either wearing diapers or risking a wetting accident. Others may perceive that their need for support causes a burden on their care providers, so they may reduce fluid intake to reduce fluid output.
Even among individuals with no disability, thirst is easily confused with hunger, and many people do not recognize they are thirsty until they are already dehydrated.
The Signs of Dehydration
It’s important to monitor the people you support for signs of dehydration. These can include:
- Feeling thirsty
- Dry mouth, tongue or skin
- Muscle cramps
- Feeling “low energy”
- Tiredness or lethargy
- Decreased urine output or dark, concentrated urine
- Dizziness or fainting
- Rapid heartbeat or breathing
- Confusion or disorientation
Note that constipation, another of the Fatal Four conditions, is a symptom of dehydration.
When a person is experiencing mild dehydration, simply drinking more fluids can be sufficient to help them recover. More extreme cases of dehydration may require intravenous (IV) fluids to prevent a medical emergency.
Complications from Dehydration
Though dehydration seems simple enough, it can result in serious complications.
- Heat injuries can occur when people are dehydrated and their bodies overheat. This can be brought on by weather or intense exercise. In its mildest form, heat injury may present as cramps. The most severe form of heat injury, called heat stroke, can be lethal.
- Prolonged lack of fluids can allow bacteria and waste to accumulate in the urinary tract and kidneys. This can contribute to kidney stones or a urinary tract infection (UTI). UTIs often go undetected and can easily develop into more serious infections.
- Both kidney stones and UTIs can result in kidney damage or failure if not treated promptly.
- Seizures can result from severe imbalances in electrolytes due to dehydration.
- Dehydration can reduce the amount of blood in the body, which can put strain on the heart and cause shock. Shock is a dangerous decrease in blood pressure, which can be fatal.
Note that dehydration can contribute to seizures, another of the Fatal Four conditions.
7 Ways DSPs can Prevent Dehydration
Because many people don’t feel thirst until they are already dehydrated, it’s important to drink fluids throughout the day, before they think they are thirsty. Here are 7 things direct support professionals (DSPs) can do to help people stay hydrated:
1) Build routines
Help the people you support build routines, such as having a glass of water after coming home from work or school. When you finish one activity, see if the person you are supporting would like a drink before starting the next. Perhaps they would benefit from carrying a large water bottle with them throughout the day? Habits like this can make staying hydrated almost second nature.
2) Be a role model
Offer frequent reminders to drink fluids. If you are feeling thirsty, suggest that you and the person you support get a drink together.
3) Know what counts
Almost any fluid provides hydration. Contrary to popular belief, coffee, tea, and soda can be hydrating. They might not be nutritious, but that’s a different problem. Many fruits and vegetables, such as melons, oranges, or cucumbers, contain fluid. Popsicles, smoothies, and similar treats may also contribute to hydration.
4) Beware alcohol and salt
Alcohol and salt in a person’s diet may increase the risk of dehydration. Both impact the balance of electrolytes in the body. Individuals who consume diets high in salt or who choose to drink any amount of alcohol should increase their consumption of hydrating fluids.
5) Be creative
If someone doesn’t like what you have offered, what do they like? Perhaps they prefer carbonation? Fruit flavors? They might prefer their beverages ice cold, or maybe the cold hurts their teeth. Offer a straw, a different cup, or a bottle with a spout. Find what works for the individual you are supporting.
6) Consider consistency
Some people may have trouble swallowing thin liquids and may prefer thicker beverages, such as smoothies. You can also add a thickener to increase the viscosity of the fluids, making them easier to swallow. Note that you may be required to have direction from a medical professional before adding thickener to someone’s beverages. Someone who cannot easily swallow thin liquids is likely at risk for aspiration, another of the Fatal Four conditions, and may require additional supports.
7) Monitor Intake
If you are working with someone who can’t manage their own fluid intake, be sure to keep good records to coordinate with the other staff. It’s easy to overestimate the amount of fluids someone has consumed. If the person can manage their own fluid intake, help them find a way to track it visually. There are many phone apps that help with this, or you can always make an old-fashioned paper chart.
Dehydration should not be taken lightly. These tips will help you prevent a dangerous condition before it starts. Recognizing the risk factors for dehydration and acting proactively today could prevent a hospitalization tomorrow.
DSPs and other caregivers need to know how dehydration and the rest of the Fatal Four – aspiration, constipation, and seizures – interact and potentially cause other serious health problems. The only way to keep the Fatal Four from claiming more lives is education and prevention.
Additional Posts About The Fatal Four
The Fatal Four in the Intellectual and Developmental Disabilities Population
There are four major health issues commonly linked to preventable deaths in people with intellectual and developmental disabilities who live in congregate or community-based settings. This fact sheet outlines some of the signs and dangers of the Fatal Four that everyone who works with people with IDD should know.
Read the fact sheet